HER2 Support Group Forums - View Single Post - Fire up the flux capacitor...new drug trial for me!

chrisy · 03-17-2012, 10:34 PM

Karen,
The protocol doesn't drop taxol, but after a few cycles you do get to "skip" some. I have a ways to go before even that milestone tho!

Psyching myself up for #2 on Monday. This is a shorter day just infusions, not waiting around an extra 6-8 hours for a blood draw afterwards. I'm also wondering if the herceptin "loading dose" partially accounts for how wiped I was. In addition to the 12 hour day right after the time change

So, a new adventure next week! Also, at some point I'm supposed to get a port..but this gang is not super good about scheduling and communication. The nurse told me last week that everyone on this trial has had to get a port, even if they've had prior chemo peripherally. She thought there may be something to do with the interaction with the study drug. Between that and shopping for hair it should be a busy week!

03-17-2012, 10:34 PM	#31
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: Fire up the flux capacitor...new drug trial for me! Karen, The protocol doesn't drop taxol, but after a few cycles you do get to "skip" some. I have a ways to go before even that milestone tho! Psyching myself up for #2 on Monday. This is a shorter day just infusions, not waiting around an extra 6-8 hours for a blood draw afterwards. I'm also wondering if the herceptin "loading dose" partially accounts for how wiped I was. In addition to the 12 hour day right after the time change So, a new adventure next week! Also, at some point I'm supposed to get a port..but this gang is not super good about scheduling and communication. The nurse told me last week that everyone on this trial has had to get a port, even if they've had prior chemo peripherally. She thought there may be something to do with the interaction with the study drug. Between that and shopping for hair it should be a busy week! __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure