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fullofbeans · 03-15-2012, 12:10 PM

Thank you all for your good words. I had an appointment today at the trial centre already (i could just go with a GP ref to save time). It is run by a private hospital but will not have to pay because it's a trial. truth is it felt like black and white compared to my hospital in the uk(despite the fact that I am treated at a centre of excellence). Indeed they are running so efficiently and with concern for the patient that I have not yet encountered at my hospital, it felt good..

they are already planning to test other receptors so they can move fast into other trial in case tdm1 does not work/i don't get it..i.e. they are pro-active.

If I am accepted (they expect it should be ok has had lots of chemo but little radiation) is a 2 to 1 chance that i get tdm1 and treatment could start within 10 days.. also it is open label so i will know straight away what it I am getting.

You know my hospital was met to give me an appointment for tomorrow, i chased them today and still have not got an appointment confirmed.. they simply have not come back to me again..

Anyhow i think tdm1 is my best option right now so please please let's hope that when she press the button the randomising computer (God) is giving me that chance.

03-15-2012, 12:10 PM	#15
fullofbeans Senior Member Join Date: Jan 2007 Location: UK Posts: 617	Re: bad news again.. Thank you all for your good words. I had an appointment today at the trial centre already (i could just go with a GP ref to save time). It is run by a private hospital but will not have to pay because it's a trial. truth is it felt like black and white compared to my hospital in the uk(despite the fact that I am treated at a centre of excellence). Indeed they are running so efficiently and with concern for the patient that I have not yet encountered at my hospital, it felt good.. they are already planning to test other receptors so they can move fast into other trial in case tdm1 does not work/i don't get it..i.e. they are pro-active. If I am accepted (they expect it should be ok has had lots of chemo but little radiation) is a 2 to 1 chance that i get tdm1 and treatment could start within 10 days.. also it is open label so i will know straight away what it I am getting. You know my hospital was met to give me an appointment for tomorrow, i chased them today and still have not got an appointment confirmed.. they simply have not come back to me again.. Anyhow i think tdm1 is my best option right now so please please let's hope that when she press the button the randomising computer (God) is giving me that chance. __________________ 35 y/o June 06: BC stage I Grade 3; ER/PR neg Her-2+++; lumpectomies Aug 06: Stage IV liver mets: 6 tumours July 06 to Jan 07: 2FEC+6Taxotere; 3*TACE; LITT March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle). Herceptin since 2006 NED til Oct 09 Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised.. Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo.. superior vena cava blocked: stent but face remains puffy April 2012: Teresa Trial, randomised to TDM1 Nov 2012 progressing on TDM1 Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes. Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor. 'Under no circumstances should you lose hope..' Dalai Lama