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Re: mTor inhibitor everolimus files 4 FDA approval er+ bc --also being tested vs her
I just got a letter from insurance today that the denial of Everolimus (Afinitor) has been overturned!! I am currently on Xeloda/Tykerb/Herceptin, but when that stops working, I now have approval to try Afinitor. I can't find any other person who is ER/PR- who has been approved for this drug outside of a trial. Hopefully this approval will help open the door for others. It took 2 1/2 months, and 2 appeals to get it through. It just shows that you should never take no for an answer. My UCSF doc didn't even feel comfortable writing a letter on my behalf because she thought the odds of it getting approved were non existent because I still have chemos I haven't tried. Thank goodness she was wrong!
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March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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