Thread: Crossroads
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Old 01-27-2012, 12:58 PM   #37
CoolBreeze
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Join Date: Dec 2009
Posts: 562
Re: Crossroads

I am not sure the principal has much to say about it. Principals have a lot less authority than people think. HR has their rules and they usually need to be followed. I don't have to go back to February 17th, and I'm thinking what I'll try is to start back February 5th half days and then work up to it. If my doctor writes it up that way, they have to do it.

I'm not physically ready but will I ever be? I'll be on chemo for the rest of my life, the next one is Xyloda, as soon as I'm completely recovered from c-diff. (Still have stomach pain). So, if I want to work, there are some pains and problems I'm going to have to put up with.

I have been struggling so hard with this decision. If I didn't have to be there so early in the morning it would be so much easier, but 7:00 a.m. is too early for my stiff and painful body, especially when it's cold.

But, I had an oncologist appointment Wednesday in which I discussed this with my doctor (he said what I knew he'd say, "there is no medical reason for you not to go back but I'll write you out if you don't feel well enough." ) and as I walked through the waiting room to leave, I saw a kid out of the corner of my eye. I glanced at her and thought, "That's a student from my school." and then though, that's not possible in an oncology office. I glanced at her sweatshirt and it wasn't a school shirt and I kept walking when she said hi. I looked up fully at her, and it was my coworkers TA, and I see her and chat with her daily. And with her was a boy who used to like to come in and play with a paperweight I had on my desk. It said, 'Keep calm and carry on" and he would start to walk by my office and say, "Keep calm!" and I" say, "carry on!" Silly stuff.

But, there these kids were, sitting in my oncologists office, while I was trying to decide what to do.

I don't believe in signs but I guess I do because it seemed like the universe was telling me to go back to work - there the kids were, kids I knew.

So, I have made the decision to try to go back and I need to talk to my sub about a return date and easing in to it. I emailed her today.

I have been setting my alarm to get up earlier and earlier but it's not successful. I set it for 8:30 today and didn't hear it even until 9:00 then pushed the snooze button until 9:30. Then it took me 3 minutes to haul myself up to the side of the bed and put weight on my knees. (I am suffering from estrogen withdrawel too). My stomach takes a while to settle in the morning but THAT, at least, is getting better weekly.

So, I guess I made a decision, in that I will try. If I can't do it then I will have given it an honest go. The one problem with that is if I apply for SSI disability, I could have gone back 49 days since I've been office. If I go back to work the clock starts over and you have to wait six months for your money. It will be very hard to go six months with nothing but we were only going to cut it by a month so I guess it shouldn't matter too much.
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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