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Old 01-25-2012, 05:28 PM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Rally our prayers...Courtney needs us

Today's update on Courtney's caringbridge journal
Wednesday, January 25, 2012 1:25 AM, PST

Progress

Not much news to report – we are waiting on some test results from Courtney’s cerebral spinal fluid. One working theory is that she has an infection in her spinal fluid which is causing the neurological issues.
Courtney is hanging on strong. She's winning the hearts of everyone in the ICU, and has the best medical team in the world.

I want to relate an anecdote of how Courtney is fighting back. She hasn’t been very verbally responsive – she doesn’t reply to many questions, although she gives you the occasional terse “yeah.”

And so, the nurse asks Courtney: "Courtney, did you swallow your pill?" No reply from Courtney. Not even acknowledgement that a person is in the room.

Again, the nurse asks much louder "COURTNEY, DID you SWALLOW your PILL?"

To whit, my wife yells back "WHY ARE YOU YELLING AT ME?!?!?” I cried laughing. The nurse just smiled.
Today was a special and moving day with immediate family. I’m just wrapping some special evening hours – I offered to read Courtney all of the emails and CaringBridge posts that have been pouring in. With her cute “yeah” of approval, and using Pandora on the iPhone to play some mellow piano jazz, I proceeded to read Courtney your messages… OK, I only made it through 30% of your messages… we paused a lot so I can confirm that she was enjoying the stories (which received several “yeahs”), but I pledge to continue reading them to her every evening.
Since we haven’t determined the exact cause of the problem, we take each day at a time.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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