Thread: Crossroads
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Old 01-07-2012, 10:21 PM   #22
CoolBreeze
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Join Date: Dec 2009
Posts: 562
Re: Crossroads

I'm not depressed - not at all. I've been enjoying my days scrapbooking. I can't put into words what c-diff did to me, but it wasn't depress me. Okay, that's not entirely true, I was a bit depressed immediately out of the hospital, but thinking deeper, I don't think depress is the right word. It was more fear than depression, I think. I was afraid of losing my colon, afraid of dying right then, afraid of this disease coming back and dying lying in my own sh*t.

I guess it made me face my mortality in a way I hadn't before, even when told I was metastatic. I knew I was going to die of course, but I always had lots of hope. I still do, but now I have a glimpse of decline. I don't know if that makes sense or not. It isn't depression, it is just deep down, bone knowledge that life is very fragile - MY life is very fragine. In an instant, you can be near death, as I was - in a very unpleasant way. And, nobody can help you. (Of course, people did help me but it didn't feel like it for a while).

I love my job, it's true. I hate getting up in the morning and it wrecks my day and every day after work, even when healthy, I have to sleep. I've never been a morning person. If I could work different hours, it'd be perfect.

I ALSO love being home but I'm quite undisciplined. I should be writing a book, or at least an ebook to sell on the blog, or organizing the house or cleaning. All those things need to be done. I'm doing a bit of scrapbooking but mostly reading. I am a good reader, I can sit all day. I read a book every single day.

My health is not good enough to go back no matter what, but maybe it will be by February 1st. Or, maybe I'll just be a sick person and won't heal all the way, ever.

What is best for me?
What is best for my son?
What is best for my family?

Is it money? Possibly since I'm not healthy enough to go on field trips or do the "mom" stuff I used to do and can't clean the house well as have zero strength. If I can go to work, that might be better than being at at-home mom.

If I don't go, I'll miss the people I work with. I have no friends that live in my town so my workmates are my socialization. Everybody else has moved and while I keep up, it's online and not the same. But, I'll get enough sleep.

And, of course, the money and the college and all the other stuff I mentioned. If I quit - will we ever get a vacation? We've only had three in 14 years......

I suppose this is all premature. I'll revisit it at the end of January because if my health is no better, it's a moot point. I am clearly not near death's door and I am able to do simple things, but even doing a big grocery shop is beyond me, I'm not strong enough. I have the "responsibility gene" and I feel like I need to give my work an indication of what is going to happen. If they need to hire somebody, I shouldn't wait until the last second.

So, we shall see. It's hard.

I do thank you all for your great and varied advice. It's wonderful to be able to see things from all sides and hear ideas you never thought about.
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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