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Old 11-23-2011, 09:03 AM   #33
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: crazy request for my oncologist?

Chek - I think most of us understand what you meant by "chronic". Having worked in a college of medicine for 15 years, most health professionals would classify any treatment that is ongoing for months or years as chronic, regardless of prognosis. But many of us have had bad experiences and are defensive for each other that we could get bad advice. We all bring a lot of emotion to this board - it's so easy to misinterpret written responses. I would hope that many of our stage IV folks would chime in that they feel their conditions are chronic and many have been in treatment for years with a great quality of life. Cancer and its treatments are a rollercoaster ride for sure. I was desparate for as much info as I could find last year when I was making decisions and doing treatments, but ultimately, those decisions were between me and my docs. The key is having a medical team you trust with your life.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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