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Old 11-16-2011, 09:23 PM   #7
CoolBreeze
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Re: Liver biopsy scheduled

I want to add something because I don't want the OP to be scared of the biopsy - I don't react to pain meds like a normal person, and Margaret said the same thing. The drugs they gave me for this was versed and fentanyl. I'm a tiny, tiny woman - 96 pounds. But, I need those drugs in doses that a 300 pounder would need them. I have this problem every single time I get prescribed medication or have to go under. It always surprised my medical team how much I need. I've had sedation dentristy with no sedation, for example. I just need more than my weight says.

Because I have a lot of biopsies and because none have hurt, and because I'm always relaxed at these tests, I didn't bother even telling them. My mistake last time. But, really, the pain was very short lasting - the time they took to push into the liver and out.

I've heard many stories and most don't have pain. Some do, but try to relax, because even if you do have pain, I think it's easier if you don't push against it.

If you had a colonoscopy and it worked, then you shouldn't have an issue with this. If you had sedation dentistry and it worked, than this shouldn't hurt. If you have had any kind of twilight sleep, than you should be okay.

And, although it hurt, I was okay.

I sure hope you get the news fast!
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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