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Re: Just wanted to share
Marlene,
uh oh! The abbreviation bug seems to have bitten you too! ty3's!!!?? Well done!!
If you are under 50, (God forbid) your reaction to Taxol, may be similar to mine. If you are over 50, Taxol is likely to be a walk in the park. Don't know exactly why that is...don't care either. Just glad it's over!
This is my post from the "Is pain normal with Taxotere" thread. (You might want to go read that whole thread.)
My fellow survivor...
I have been where you are.
People kept telling me how strong and brave I was...and I was feeling that way too, until Taxol poisoning hit.
Oh, my Dear God!
I have never been more frightened or miserable in my life. I hesitate to call the pain a 10, because there may, actually be something worse...but it was pegged at 9 out of 10, for days!
After 2 rounds of that...I told my onc., "If there isn't a way to manage the pain better, I can't do this again. The pain is more than I can bear." I was actually more afraid of the pain, than I was of the cancer at that point!
It was only then that 'magically', Advil was no longer out of the question. You might want to try that same tactic. The combo of the advil (600mg every 6 hours) AND the narcotic (oxycodone is what I took) made the pain something I could tolerate. It only ever went down to 2 or 3, like a headache, but at least I didn't have to stop treatment.
In hindsight, I realize that "being strong" doesn't mean suffering without complaining...it sometimes means complaining until someone helps you stop suffering!!
Please...insist that the doctor finds a way to help you manage the pain. It's his job. And, more importantly, you deserve it.
You're entitled to good pain management!
Please let us know how you make out, I'll be thinking of you.
Denise
And, of course, if you have any questions you don't feel comfortable posting, please feel free to send me a private message any time. I'll be praying for you this weekend...just in case "Taxol Poisoning" strikes. Let me know how you make out!
Denise
PS-Neulasta can give you aches too. Is this the first time you've had it?
PPS- it should be against some natural law to have hot flashes followed by chills...just as I've always thought that zits and wrinkles should not be able to coexist on the same face!!
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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