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Old 09-25-2011, 11:25 AM   #4
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Re: NCCN Breast Cancer Guidelines

It is interesting to see that the "health care" practice by oncology specialists continues, of not providing newly diagnosed patients with the simple and considerate courtesy of informing patients that this information exists online for them to consider. It existed in 2002 also when I was diagnosed, but no information regarding it was provided to me about it back then, either, and I discovered it on my own only after beginning a particular recommended treatment plan.

There are advantages to providers in avoiding providing patients with reasonable information to assist them in making decisions about the basis for the various options they are expected to choose from.

Whatever your decision process is based upon, a helpful book to read is "Your Medical Mind", by Jerome Groupman and Pamela Hartzband.

http://her2support.org/vbulletin/showthread.php?t=51449

or

http://www.npr.org/2011/09/21/140438...ecision-making

AlaskaAngel
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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