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Old 09-20-2011, 07:13 PM   #4
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Need some advice

Tracy - it's a terrible trauma to have part of your body amputated and that's what mastectomy is-but it's not like we've lost an arm or leg. I chose a bi-lateral which turned out to be a really good decision. I also chose not to have reconstruction at the time of my mx. Several months later I felt differently and decided to explore my options for reconstruction. Then I threw 3 pulmonary embolisms (or emboli??) and now am not a candidate for any elective surgery. I won't lie to you - some days when I look in the mirror, I feel a little like a freak. Even at the ripe old age of 62, I really miss having breasts and the prostheses just feel like a heavy harness. But then I hear my grandchildren laugh, see my husband smile at me, feel the fall breeze on my face and I am so grateful to be alive. I know the bad feelings will continue to resurface from time to time no matter how hard I try to keep them locked away but we all have bad times even before we were cancer patients. I highly recommend that you find a good therapist who can help you deal with all you are going through. There are wonderful professionals who can really make a difference. Anti-depressants and anxiety medications are very helpful, too, but the therapy can give you the tools that will make a difference in the future.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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