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Anyone tried Neratinib?
I have been looking for clinical trial to start since I have finished my Herceptin. I looked up the vaccine trial but it is too far away from me and requires overnight stays. The contact person referred me to the clinical trial using neratinib. I think my onco suggested this but I can't remember if the name of the drug was the same.
She stated that it causes diarrhea. How bad
Has anyone tried this one? How bad was the side effects?
Suzanne
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 dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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