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Old 08-10-2011, 04:34 PM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
More than 1 type Triple Neg & Her2+++

My sister met with the oncologist today and she falls into a very rare and unusual category...even her breast oncologist said she would probably present her case at ASCO, because of the path reports. My sister was originally diagnosed with a 9mm Papillary breast cancer on the left side, triple negative, and due to the MRI results, and the possibility of dense Breast tissue and DCIS on the right, she opted for a bilateral mastectomy. She had a sentinel node biopsy on both sides...which were negative. The pathology report revealed a secondary IDC 5mm. On the left side, which was also triple negative. The right side, revealed a 4mm IDC and a small amount of DCIS...the IDC on the right is HER2+++, ER+ and PR-
She will undergo 6 rounds of Taxotere/Cytoxin, with Herceptin for 1 year. She is needless to say very thankful that she opted for bilateral and the second type of cancer was found, but very scared due to the rarity of this diagnosis. The oncologist wants the records of my Moms breast cancer, and has mine....very unusual since I was Neg for BRCA 1&2....
Please keep her in you prayers.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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