View Single Post
Old 08-05-2011, 10:29 AM   #29
KristinSchwick
Senior Member
 
KristinSchwick's Avatar
 
Join Date: Jun 2011
Location: Iowa
Posts: 231
Re: ca.2729 big jump

Pam, I see you are in MN. I am in Iowa and my oncologist says there is a doctor in Cedar Rapids, IA who can get TDM-1. Also do you know that you can stay for free at alot of hospitals that have hotels associated with them. For me in Iowa City (20 min from Cedar Rapids) we have the Hope Lodge (a Ronald McDonald house for adults) and then inside the hospital there is a hotel and the rooms are $15/night!!!! Please look into those types of options, I'd hate for you to miss an opportunity to get that wonder drug.
__________________
[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
KristinSchwick is offline   Reply With Quote