Thread: 8 of 14 nodes
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Old 07-28-2011, 11:15 AM   #8
bejuce
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Join Date: May 2009
Posts: 510
Re: 8 of 14 nodes

Hi Deb,

Sorry to hear that. As you can see from my signature, I too had lots of nodes after chemo. I participated in a neo-adjuvant clinical trial at Stanford and in the end all I had at my mastectomy were residual cells at 11 nodes. The pathology report estimated that 95-98% of the original tumor in the nodes was gone with chemo, and all that was left was small foci of cells (no tumor was found in the breast). I remember talking to my surgeon about it the time, how come the huge tumor in the breast went away but not the nodes? He couldn't come up with an explanation, except to say that sometimes that happens and that the nodes can he harder to reach. One doctor I saw in Orange County last year (Dr. Link) told me that he thinks my prognosis is much better than what the number of nodes would indicate, given the treatment I got and how well I responded to it. So try not to dwell on the number so much.

I had my moments of panic when I found out, but immediately went into attack mode and got my team to give me Xeloda (albeit at a low dose) during my course of radiation. I'm about to celebrate my 2 years from surgery (2 1/2 from diagnosis) in a couple of weeks and I'm fine so far. I plan to be fine for a long, long time.

Given your attitude, smile, and fabulousness, I'm confident you'll be too. We're all here for you if you need support.

Love,

Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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