HER2 Support Group Forums - View Single Post - Looking for your thoughts/advice

Sheila · 07-07-2011, 12:01 PM

Maureen
Mine was in the same side as my BC closer to the jaw..only about the size if a dime when I felt it....I had it removed, mine was the BC ..identical to my original tumor assay...only I had all clean nodes then. I did have mine removed, and it (they) the nodes have returned over and over....seems they are stubborn little buggers....get it out for your own peace of mind....mine was done under light sedation, and I never had any problems...went home an hour later. My oncologist was upset that they removed all of it...guess it is a good place to see treatment response if it is a positive node. You are in my prayers....it is so small it seems to be just a node...but get it checked for your own peace of mind!
By the way, I got my Coobie and I love it!!!!
Big hugs to you!

07-07-2011, 12:01 PM	#2
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Re: Looking for your thoughts/advice - Do I biopsy or not? Maureen Mine was in the same side as my BC closer to the jaw..only about the size if a dime when I felt it....I had it removed, mine was the BC ..identical to my original tumor assay...only I had all clean nodes then. I did have mine removed, and it (they) the nodes have returned over and over....seems they are stubborn little buggers....get it out for your own peace of mind....mine was done under light sedation, and I never had any problems...went home an hour later. My oncologist was upset that they removed all of it...guess it is a good place to see treatment response if it is a positive node. You are in my prayers....it is so small it seems to be just a node...but get it checked for your own peace of mind! By the way, I got my Coobie and I love it!!!! Big hugs to you! __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin