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Old 07-05-2011, 05:02 PM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
1st on Halaven, now 1st off of it

Seems after the initial miraculous response to Halaven...(Eribulen Mesylate) , the body is now showing a mixed response....my CT looked great, but the neck nodes doubled in 2 weeks and now another large one...so game change yet again...I sure wish the cancer wasnt so smart. I will begin Gemzar with Herceptin next week.....I did get 7 months out of the Halaven, and I am thankful.....seems I am one of the few getting my hair back while still on it.....I must have amazing hair follicles!
So on to Gemzar.....hoping it will be my magic for a while...seems it will be weekly...not looking forward to being tethered to the IV bag that frequently...but we do what we must. Hoping I will still feel good enough to help my sister, as she goes through a double mastectomy and bilateral sentinel node dissection in 2 weeks.

New Avatar is my Dad and I at Relay, celebrating 35 yrs total of cancer survival.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin

Last edited by Sheila; 07-05-2011 at 05:09 PM..
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