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Nancy L · 06-23-2011, 07:23 PM

I have been on this combo for 30 months and continue NED as of this month's Pet/CT Scan. I take Herceptin every three weeks and 750mg of Tykerb nightly. Dr. Slamon told me we are in "unchartered waters" with this combo so he said we would talk about next steps if I stay NED for 3 years. What I know he means is that there isn't much data to show how long this combo might continue to work for metastatic disease. I am grateful it continues to work with minimal side effects that I can deal with after everything else I have experienced on this journey. I hope my post gives others hope. Never never give up HOPE.

06-23-2011, 07:23 PM	#20
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: Tykerb/Herceptin Update!! I have been on this combo for 30 months and continue NED as of this month's Pet/CT Scan. I take Herceptin every three weeks and 750mg of Tykerb nightly. Dr. Slamon told me we are in "unchartered waters" with this combo so he said we would talk about next steps if I stay NED for 3 years. What I know he means is that there isn't much data to show how long this combo might continue to work for metastatic disease. I am grateful it continues to work with minimal side effects that I can deal with after everything else I have experienced on this journey. I hope my post gives others hope. Never never give up HOPE.