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Re: trials / brain mets?
Beatriz;
I in a similar situation with you in that I have one brain met in brain stem (sucky place) and have been looking for trials; also asked CourtneyL for info. I am dealing with radiation necrosis right now and am looking if there are any trials.
Just in case you haven't looked at this site, there's a section of all trials dtd May 2011. I would look there. I would also send a message to the Brainmetbc asking for trial information. Musa Mayer who runs the site has been very helpful to be in giving me two 2nd opinion Oncologists in NY and Boston. I decided to see a neruo oncologist.
Did you see Kavy's post where it appears that Halaven is shrinking her tumors?
Hope this helps. Good luck with the trial search and please keeps us updated. I feel like my back is to the wall at the moment.
http://www.brainmetsbc.org/
Hugs,
Kris......
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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