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Re: Navelbine
I have been on Navelbine for over 4 years. I also find it easy to take with my biggest side effects being low white blood count (I get Neupogen and Neulasta injections for this), heartburn, and altered taste buds. Food tastes "off" but it hasn't stopped me from eating it ;-). I was bald when I started Navelbine and I now have shoulder length hair...it has "thinned" twice in 4 years but nothing that anyone but me noticed.
Also, as Sheila mentions, Navelbine is very hard on tissue and my cancer center strongly recommends a port for infusions. Not to scare you, but my last port malfunctioned last year and I have first-hand experience on Navelbine infiltrating the surrounding tissue (I have a new port now). If it is just for the short-term, you probably won't need one, but if it looks like you will be on Navelbine for awhile, you may want to consider getting a port.
Good luck to you! My liver has been "clear" for awhile now thanks to Navelbine and I hope it does the trick for you.
Colleen
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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