HER2 Support Group Forums - View Single Post - The 'Gene' factor

Jackie07 · 05-09-2011, 04:08 AM

Happened to come across this website (with a beautiful song) today, thought I'd share it with everyone here:

http://www.jacobintl.org/index.html

There are many useful links on the website, be sure to check it out.

Some may wonder why a Chinese/Oriental breast cancer survivor would care about a website that plays a Jewish song. Well, the common genes have been found in many different regions of the world, including China. I was introduced to the story about the Jews in Kaifeng (An ancient Capital of China) by one of the members here and bugged my oncologist to 'prescribe' me a gene test (costs about $3000.00) To everyone's surprise, the test revealed a BRCA1 - Variant of uncertain significance.

I put the test result aside until half year later when I was told about my 2nd Brother's (10 years my senior) colon cancer surgery and treatment. Since my (soon to be 88) Mother is a (now 13-year)Non-Hodgkins Lymphoma survivor, I looked up the Internet and found a cluster called HNPCC (Hereditary Non-polyposis Colon Cancer) which seems to explain the cancer incidents in my family.

So I requested for and was approved (based on personal/family cancer history and BRCA test result) to have a prophylactic (preventive) hysterectomy/oophorectomy January 2010, one month short of my 50th birthday. I've been feeling so much better I'm quite sure that I've escaped some big problems in the future. [The surgeon had mentioned that he could see there're already some changes inside of my uterus ('uterine hyperplesia'?)...]

I had already had a ‘clean’ colonoscopy a year prior. Yet with a family member's colon cancer history, I was told by my family doctor that I will need to have a follow-up colonoscopy every 5 years instead of the standard 10 years.

The best web sources for the 'gene' topic is probably

FORCE: Face Our Risk of Cancer Empowered http://www.facingourrisk.org/events/local_events.php

which has also been introduced/often reminded by ‘Soccermom’. She posted a link in March about the upcoming FORCE conference in Orlando, FL
http://her2support.org/vbulletin/sho...ighlight=Force

05-09-2011, 04:08 AM	#1
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	The 'Gene' factor - enjoy the song Happened to come across this website (with a beautiful song) today, thought I'd share it with everyone here: http://www.jacobintl.org/index.html There are many useful links on the website, be sure to check it out. Some may wonder why a Chinese/Oriental breast cancer survivor would care about a website that plays a Jewish song. Well, the common genes have been found in many different regions of the world, including China. I was introduced to the story about the Jews in Kaifeng (An ancient Capital of China) by one of the members here and bugged my oncologist to 'prescribe' me a gene test (costs about $3000.00) To everyone's surprise, the test revealed a BRCA1 - Variant of uncertain significance. I put the test result aside until half year later when I was told about my 2nd Brother's (10 years my senior) colon cancer surgery and treatment. Since my (soon to be 88) Mother is a (now 13-year)Non-Hodgkins Lymphoma survivor, I looked up the Internet and found a cluster called HNPCC (Hereditary Non-polyposis Colon Cancer) which seems to explain the cancer incidents in my family. So I requested for and was approved (based on personal/family cancer history and BRCA test result) to have a prophylactic (preventive) hysterectomy/oophorectomy January 2010, one month short of my 50th birthday. I've been feeling so much better I'm quite sure that I've escaped some big problems in the future. [The surgeon had mentioned that he could see there're already some changes inside of my uterus ('uterine hyperplesia'?)...] I had already had a ‘clean’ colonoscopy a year prior. Yet with a family member's colon cancer history, I was told by my family doctor that I will need to have a follow-up colonoscopy every 5 years instead of the standard 10 years. The best web sources for the 'gene' topic is probably FORCE: Face Our Risk of Cancer Empowered http://www.facingourrisk.org/events/local_events.php which has also been introduced/often reminded by ‘Soccermom’. She posted a link in March about the upcoming FORCE conference in Orlando, FL http://her2support.org/vbulletin/sho...ighlight=Force __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 05-09-2011 at 05:04 AM..