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Old 05-02-2011, 04:44 AM   #2
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Re: Brain MRI results after Xknife

Oh Karla, This is not the news we wanted to hear. I sure can't advise you on treatment except to say it seems you radiologist is quite firm on the fact that that wbr is the best treatment now - and zap it now, not wait. WBR will attach all the tumors at once. Having just done 20 treatments of wbr I know it's not a walk in the park but if it does the job ...

I finished wbr about 1 month ago now and will have to wait another month I guess for an mri so have no results yet. My largest tumor 2,.6 was also in cerebellum. Also 2 more in cerebellum a little smaller ... and 5 or so small ones other places. I got really tired and weak - the decadron really weakened my muscles. Had I known h0w bad that could get I would have done some little strength exercise program each day to prevent it. Now I feel much stronger -- not yet back to "normal" but much better. But remember I had the 2 leg surgeries and weakness there going into the rads. If you do the wbr they'll probably hold off on the halavan during that time - at least that's what they did for me.
I don't know if hearing about my experience helps but gives you more info,.

You and your radiologist will make the right decision on how to zap those darn mets. Holding you in prayer for good treatment and good results. Pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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