HER2 Support Group Forums - View Single Post - Anyone Doing Traveling For T-DM1 In Fairfax?

Lori R · 04-26-2011, 06:39 AM

Dear Karen,
So sorry to hear about the mets to your liver. I fully appreciate the challenge of figuring out the next steps.

As you can see via my treatment history, I tried cryotherapy + chemo which bought me time but didn't fully resolve the issue. Recently tried liver resection and I am keeping my fingers crossed that this works. The resection while very doable, was major surgery and not a procedure to be taken lightly.

So.....I am keeping my fingers crossed that you can gain access to TDM-1 and achieve the same results as Chrisy!!! It would be such a major coup for everyone on the site.

Wishing you strength (and sanity) as you weave your way through all of the administrative tasks required to gain access.

Hugs.....Lori

04-26-2011, 06:39 AM	#4
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Anyone Doing Traveling For T-DM1 In Fairfax? Dear Karen, So sorry to hear about the mets to your liver. I fully appreciate the challenge of figuring out the next steps. As you can see via my treatment history, I tried cryotherapy + chemo which bought me time but didn't fully resolve the issue. Recently tried liver resection and I am keeping my fingers crossed that this works. The resection while very doable, was major surgery and not a procedure to be taken lightly. So.....I am keeping my fingers crossed that you can gain access to TDM-1 and achieve the same results as Chrisy!!! It would be such a major coup for everyone on the site. Wishing you strength (and sanity) as you weave your way through all of the administrative tasks required to gain access. Hugs.....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)