HER2 Support Group Forums - View Single Post - update

Kavy · 04-15-2011, 03:13 AM

Pam,
I'm sorry to hear you are still not feeling well, but remember that your last WBR was not too long ago, and you are probably still getting the side effects. You also said that you are stopping Decadron, and I hope you are doing this very slowly because last week I tried to stop decadron, I was on 2mg daily, so I went one day yes, one day no for about a week, and then stopped taking it. I ended up in bed for 4 days without any energy, any strength, the only thing I wanted was to sleep, and I slept day and night, neither TV or computer interested me, nothing. I started vomiting, so my husband called my radiation oncologist, and he said I had to go back on the decadron. A few hours later, I was feeling better, and I did not feel like sleeping anymore. I think that your weakness, lack of energy, not being able to get out of bed has to do with the decadron. As Stephen said, once you are off that horrible drug for around 10 days, you might feel much better.
I'm happy to know you had Halaven yesterday.Yeah!!!! Did you get it with Herceptin? By the way, I was trying to stop decadron to start Halaven with Herceptin next week.
I'm sending healing prayers your way for you to get your strength back very soon, and feel like yourself again.
Hang in there.
A big hug,
KarlaV.

04-15-2011, 03:13 AM	#27
Kavy Senior Member Join Date: May 2006 Posts: 157	Re: update - on wbr & how I'm feeling Pam, I'm sorry to hear you are still not feeling well, but remember that your last WBR was not too long ago, and you are probably still getting the side effects. You also said that you are stopping Decadron, and I hope you are doing this very slowly because last week I tried to stop decadron, I was on 2mg daily, so I went one day yes, one day no for about a week, and then stopped taking it. I ended up in bed for 4 days without any energy, any strength, the only thing I wanted was to sleep, and I slept day and night, neither TV or computer interested me, nothing. I started vomiting, so my husband called my radiation oncologist, and he said I had to go back on the decadron. A few hours later, I was feeling better, and I did not feel like sleeping anymore. I think that your weakness, lack of energy, not being able to get out of bed has to do with the decadron. As Stephen said, once you are off that horrible drug for around 10 days, you might feel much better. I'm happy to know you had Halaven yesterday.Yeah!!!! Did you get it with Herceptin? By the way, I was trying to stop decadron to start Halaven with Herceptin next week. I'm sending healing prayers your way for you to get your strength back very soon, and feel like yourself again. Hang in there. A big hug, KarlaV.