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Re: Michka, How Are you
Sheila, not even past your home door and thinking of others!
I did not intend to post but I will answer because I do not want you to think I am not doing well! As someone wrote on our forum "liver resection is not an easy procedure". I knew it. The worst part is over, I want to forget it. I came home last Tuesday.
The surgeon told me she took out 2 mets by resection and 2 other ones by RFA.That was planned. What was not is that she also took out 2 nodes under the liver she didn't like. I should get the pathology report next week. That put me down. How come it was not visible on MRI?
I am still trying to cope with a problem that started 3 or 4 days after surgery. I started to have a horrible taste in my mouth. Like during chemo. Then it became much worse and I kept telling them to stop giving me medication. I felt that the excess of medication was just intolerable for me. But they did not really take that into account because they saw I was also in pain. Then I had a urinary tract infection and they gave me antibiotics.
I asked to leave the hospital and stopped everything including the antibiotics.
I got rid of the UTI now. But not the horrible taste. It even stops me from sleeping. My local doctor came to see me at home and said it might be a fungal problem. She had a lab come to the home for a throat swab culture and started me on a treatment. I will only have the result in 2 days. My feeling is that my digestive system is in a very poor shape. They gave me anti inflammatory medication (Profenid) for the pain because I had bad reactions to other pain medication (Tramadol, Acupan). And this just was too much without speaking of the antibiotics they added after that.
I believe my digestive system had not recovered enough from Tykerb.
So far, after 2 days I feel no improvement from the anti-fungal treatment. I do not know how much time it takes to work. I am eating yogurt.
What makes recovery more difficult is that I do not take pain medication.
My next appointment with my onc is Friday. I have no idea what the plan will be if these nodes are positive.
I am happy to be home and I am lucky to have a wonderful man taking care of me every minute.
Love to all. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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