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Old 04-09-2011, 06:31 AM   #102
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Prayers For Sheila

Again, thank you all so much for the support, love and prayers, there is no doubt in my mind that is why I am still here to type this. Got home late yesterday. The only diagnosis the specialists can come up with was a pneumonia and flash pulmonary edema, a rare occurence from a sudden spike in B/P. As I am piecing more together, I evidently collapsed and quit breathing after feeling like my lungs filled with fluid, and was bagged until the ER when they placed me on a ventilator. Since I am not a fan of vents or helicopters, glad I do not remember anything...I do remember the scary feeling of not being able to breathe as my lungs rapidly filled, and nothing after that. Thank heavens for the Diprovan, which I of course called the Michael Jackson drug they gave me. Go back to see the oncologist next Tuesday, to see if I will stay on the Halaven...i have missed 3 now and my neck is showing it. On an up note, my white counts have recovered quite nicely. Ordered to now keep low key for a while, and hope to get my sea legs back....I feel like I have been drug through a knot hole....so thankful again for all your prayers and support, that is why you are all part of my Her2 FAMILY!, and it is a FAMILY!
Much Love
Sheila
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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