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Old 03-12-2011, 04:56 PM   #8
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: Wanted to share this....

Jean,
Yrs ago I had a friend I worked with. She walked up to me and was red from her upper chest to her face. I found out she was taking Niacin. She told me she had just started taking it and that was going to be the last time. It scared her! I have to say...she really looked bad...I was really concerned about her. They call it the niacin flush...they say it's not harmful...but I know my friend said it made her very uncomfortable to say the least.

So sorry to hear you went through that, but I'm glad you posted that here because I'm certain there are many women that have never heard of this before. It's nice to have a warning with something like this. Especially when most all of us on this board take all kinds of different supplements. This way they get the heads up! Thanks for sharing your experience as misrable as it must of been.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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