Re: radiation causing lymphedema
My lymphedema started with a bee sting -- all was going well until that point. Radiation can further damage the nodes, so it can be a tigger point for lymphedema. I have sleeves and a night garment. I am good about the night garment but have been in denial about using the sleeves -- however I recently started wearing them. I think it finally dawned on me that I was going to live, and I did not want out of control lymphedema. There are several brands, and several weights. I have some that are stronger, and some that are more lightweight. After a while, you will be a feel for when you "need" extra compression. I use my lightweight garment and night sleeve, but heavy up if I feel I am swelling. There is also a lot of useful information at www.lymphnet.org. I hope this helps.
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Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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