HER2 Support Group Forums - View Single Post - if had or brain mets please share your knowledge

GracePang · 03-07-2011, 07:39 PM

Hi Pam,
Sorry for being late to chim in and sorry to hear the suck news about your brain mets. I understand your anxiety, since I experienced the same when mine was found last July. I had 12 sessions of WBR finished by early Aug, since I had over a dozen of small brain tumors; SRS was not an option for me. A follow up MRI after about 40 days showed that all tumors shinked; but by December for the 2nd round follow up, they found 3 of the old tumors became active again. They gave me gamma knife in Jan and the following up MRI was scheduled in April. I don't have much symptoms and I didn't take steroid during either WBR or Gamma knife, but I took Boswallie on my own. I feel good now, even though with some fatigues from time to time. I am on Xeloda and Tykerb now. If you have any specific questions about my experence with the treatments, please pm me. Love, Grace

03-07-2011, 07:39 PM	#21
GracePang Senior Member Join Date: Jul 2010 Posts: 42	Re: if had or brain mets please share your knowledge Hi Pam, Sorry for being late to chim in and sorry to hear the suck news about your brain mets. I understand your anxiety, since I experienced the same when mine was found last July. I had 12 sessions of WBR finished by early Aug, since I had over a dozen of small brain tumors; SRS was not an option for me. A follow up MRI after about 40 days showed that all tumors shinked; but by December for the 2nd round follow up, they found 3 of the old tumors became active again. They gave me gamma knife in Jan and the following up MRI was scheduled in April. I don't have much symptoms and I didn't take steroid during either WBR or Gamma knife, but I took Boswallie on my own. I feel good now, even though with some fatigues from time to time. I am on Xeloda and Tykerb now. If you have any specific questions about my experence with the treatments, please pm me. Love, Grace