[ElaineM]

If you go to clinicaltrials.gov and then type T DM1 in the search box you will get a list of T DM1 trials available. Click on one that interests you to get the details, including a list of the locations where it is available. Just because the expanded access program might not be totally available to alot of people there are other T DM1 trials recruiting people.
After you find one that interests you work with your doctor to connect to the authorities at a location near you or contact them directly to get more information, consent forms or make arrangements to participate.
Just maybe if enough people participate in these trials T DM1 has a better chance of going through the FDA process in a timely manner, so that even more people can receive the drug.