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Old 02-24-2011, 11:49 PM   #37
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Re: To treat or not to treat VERY early stage HER2 IDC

Whatever your choice, best wishes to each of you. Getting through chemotherapy and radiation treatment can be done. It wasn't fun, but I did it.

For those who are at least risk for recurrence, consider:

A percentage of those who choose chemotherapy to "play it safe" will end up with recurrence despite having gone through chemotherapy.

A percentage of those who choose chemotherapy to "play it safe" will end up disabled by chemobrain because they did chemotherapy, and there is no way to know whether chemotherapy prevented recurrence for them. Those who do not chose chemotherapy do not have that risk.

A percentage of those who choose chemotherapy to "play it safe" will end up disabled by permanent neuropathy because they did chemotherapy, and there is no way to know whether the chemotherapy prevented recurrence for them. Those who do not chose chemotherapy do not have that risk.

A percentage of those who choose chemotherapy "to play it safe" will end up with leukemia because they did chemotherapy, and there is no way to know whether the chemotherapy prevented recurrence for them. Those who do not choose chemotherapy do not have that risk.

It is unknown how many who do chemotherapy and radiation experience a return of cancer because they did chemotherapy and radiation, but both are considered carcinogenic.

AlaskaAngel
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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