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Darlene Denise · 02-21-2011, 04:13 PM

Sorry for what your Mom is going through. These are very concerning symptoms. I would request a spinal fluid tap ASAP. Your mom needs immediate intervention and should not have to feel this type of pain and discomfort.

This is a great forum for comfort and friendly advice but I would seek a second opinion as far as future treatment from an Inflammatory specialist at an NCI designated facility. Dr Cristofanilli with Fox Chase in Philadelphia is head of the Inflammatory Clinic there and transfered from MD Anderson. MD Anderson also has such resources. Many local oncologists are not well educated when it comes to this rare aggressive form of Stage IV BC, I would not rely on them at this pivotal time.

Wishing you the best possible outcome and hope you will keep us informed.

Darlene

02-21-2011, 04:13 PM	#3
Darlene Denise Senior Member Join Date: Aug 2008 Location: Virginia Beach, Virginia Posts: 145	Re: Severe Symptoms: Brain Mets & Decadron Sorry for what your Mom is going through. These are very concerning symptoms. I would request a spinal fluid tap ASAP. Your mom needs immediate intervention and should not have to feel this type of pain and discomfort. This is a great forum for comfort and friendly advice but I would seek a second opinion as far as future treatment from an Inflammatory specialist at an NCI designated facility. Dr Cristofanilli with Fox Chase in Philadelphia is head of the Inflammatory Clinic there and transfered from MD Anderson. MD Anderson also has such resources. Many local oncologists are not well educated when it comes to this rare aggressive form of Stage IV BC, I would not rely on them at this pivotal time. Wishing you the best possible outcome and hope you will keep us informed. Darlene __________________ 12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY 01/14/08 2 AC TREATMENTS-NOT WORKING 02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS! 05/12/08 HERCEPTIN EVERY 3 WKS 08/22/08 BRAIN METS! 8 <5MM 09/17/08 CYBERKNIFED BRAIN METS 10/20/08 BRAIN METS SHRINKING 12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT 01/16/09 LIVER REOCUR-XELODA/HERCEPTIN 03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ? 3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN 06/08/09 STUPID BRAIN HAS 3 LESIONS 06/29/09 CYBERKNIFE 07/01/09 LIVER REGRESSION NO NEW METS 07/07/09 TYKERB XELODA HERCEPTIN 11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION 03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!! 03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE 05/21/10 NAVELBINE/HERCEPTIN WORKING! 07/19/10 GOOD BRAIN MRI 08/20/10 LIVER PROGRESSION 09/08/10 TDM1 - NASHVILLE TN 01/10/11 LIVER RESPONDING TO TDM1