HER2 Support Group Forums - View Single Post - A little speck of not so bad news (maybe)

Kavy · 02-15-2011, 10:46 PM

Hi, Delaney,
I'm glad you are feeling more under control, and that your lungs are clear.
Nobody can predict how long you have to live, neither the doctors.
I also have brain mets, but mine are not specks, and I did not have WBR, I think it should be saved for later. Since you have just 2 specks, you should try to zap them with target therapy SRS, like Gamma Knife, Xknife, Cyberknife, Novalis, etc. My first radiation oncologist wanted me to do WBR, but I refused, I wanted surgery, but I ended up having Xknife. Do your research, you have time. Suggest your doctor to do Cyberknife now for the 2 specks, and WBR if there are a lot more specks in the future.
I hope and pray you make the right decision. Hang in there.
Hugs,
KarLa V.

02-15-2011, 10:46 PM	#8
Kavy Senior Member Join Date: May 2006 Posts: 157	Re: A little speck of not so bad news (maybe) Hi, Delaney, I'm glad you are feeling more under control, and that your lungs are clear. Nobody can predict how long you have to live, neither the doctors. I also have brain mets, but mine are not specks, and I did not have WBR, I think it should be saved for later. Since you have just 2 specks, you should try to zap them with target therapy SRS, like Gamma Knife, Xknife, Cyberknife, Novalis, etc. My first radiation oncologist wanted me to do WBR, but I refused, I wanted surgery, but I ended up having Xknife. Do your research, you have time. Suggest your doctor to do Cyberknife now for the 2 specks, and WBR if there are a lot more specks in the future. I hope and pray you make the right decision. Hang in there. Hugs, KarLa V.