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Re: I don't know what to say other than HELP !!!
Hi all home for the week and feeling so much better. I'm now taking less dexamethasone.
Anyway big week last week i sacked my radiologist onc and have a new one he's great. Straight away I had a full brain MRI from this they found 10 mets which sounds bad but the one large one I had is made of three, may Brain CT was very poor quality. All mets are in a similar area with only one that is front left Brain. So this means they are all small. Thats good right?
Anyway after getting over this shock I have been booked in for VMAT (new machine and new to NZ) radiation not WBR. this takes some planning and it looks like I will start on 23 FEB .
On Wed we meet with my onc and they are still talking T-DM1 + pertzumab as it cross the blood brain barrier I think.
My CT of the rest of me was CLEAR.......Yeah!!!!
Time to rest and research.
Luv Jacqui
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Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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