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Re: A couple of years
Thank you all for your help. I will definitely check if I can travel to get cyberknife. And Elaine - you are here 11 years after a poor diagnosis!!! Wow. My doctor was so lovely today, I always go in on my own and the nurses gave him a hard time because he broke the news to me on my own. But I had asked him and I'm glad he was so honest with me and if he had said wait until your husband comes in, well then I would have really freaked out. I'm not telling my children yet, no sense in us all being miserable, I will see how it goes.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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