A couple of years
CT scan results today - major progression. At least 3 brain mets - have been on Tyverb since 2009- guess that doesnt always work!
Also progression in bone and skin mets and lymph nodes.
I asked about Cyberknife or Gammaknife and was met with a blank look. Guess we do not have that in Ireland.
Starting brain radiation next week, hope they sedate me as those cages belong in a horror movie.
Also starting Gemzar, got Zometa today.
Doctor told me to keep the faith as he has seen people live 'a couple of years' with such a diagnosis. Feel like I am now the walking dead. Need to rant here as am trying to keep my sanity.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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