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Re: Need your Help/Advice - Got Dx with Brain Met
Adding my voice to the chorus of support for you, dear Kris. I too have been battling brain mets. I hope that yours turn out to be nothing. I just wanted to add that I have had tumors in my brain stem and they were not accompanied by any swelling or inflammation. So it is possible. If yours turn out to be brain mets, know that they absolutely can be treated successfully with Gamma Knife. I've been experiencing double vision as a result of another tumor found this past December. I had it Gamma Knifed two weeks ago and my vision is already improving. I hope yours does the same. Know that we are here to offer support and to help however we can.
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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