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schoonder · 01-23-2011, 07:17 AM

Thanks for starting this thread Michka.
Phil is surprised by how little response he has received so far from patient population in need of this drug. Here's link to this T-DM1's advocate recent

posthttp://community.breastcancer.org/forum/8/topic/763725?page=1#post_2192378

which reads:

"Hi, this is Phil. thanks to English major for the post about our next trip, to get T DM-1 in Va. Mon. to Wed. this week. We have heard from 2 more HER2 patients. One has traveled from Boston to Va., just like we did. So, thats 4 patients in Boston who need it here. I'm sure there are more. Back in October, a nurse at Farber told us there were 100 women waiting for T DM-1 there. I am still puzzled by not hearing from any women in the NY area ?
Where are the advocacy groups ? NBCC , which fought for the original Herceptin in the 1990's, ACS, Komen ? I've contacted all 3, no help.
I spend most of my time on Inspire, so contact me there. To the FDA : Approve Now, Test Later."

Hope Phil is successfull when he meets with
The United States Senate Committee on Health, Education, Labor, and Pensions (HELP) which considers matters relating to health, education, labor, and pensions.
Surely help from any and all her2board members would be greatly appreciated.

01-23-2011, 07:17 AM	#2
schoonder Senior Member Join Date: Jul 2008 Posts: 186	Re: Pushing this up from TDM1 thread Thanks for starting this thread Michka. Phil is surprised by how little response he has received so far from patient population in need of this drug. Here's link to this T-DM1's advocate recent posthttp://community.breastcancer.org/forum/8/topic/763725?page=1#post_2192378 which reads: "Hi, this is Phil. thanks to English major for the post about our next trip, to get T DM-1 in Va. Mon. to Wed. this week. We have heard from 2 more HER2 patients. One has traveled from Boston to Va., just like we did. So, thats 4 patients in Boston who need it here. I'm sure there are more. Back in October, a nurse at Farber told us there were 100 women waiting for T DM-1 there. I am still puzzled by not hearing from any women in the NY area ? Where are the advocacy groups ? NBCC , which fought for the original Herceptin in the 1990's, ACS, Komen ? I've contacted all 3, no help. I spend most of my time on Inspire, so contact me there. To the FDA : Approve Now, Test Later." Hope Phil is successfull when he meets with The United States Senate Committee on Health, Education, Labor, and Pensions (HELP) which considers matters relating to health, education, labor, and pensions. Surely help from any and all her2board members would be greatly appreciated.