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Joan M · 01-12-2011, 05:22 PM

Michka,

I'm sorry that you are now hearing about these two extra mets. I had a similar experience with my lung nodule.

When I was stage 2b I had a PET/CT that was okay. Then, about seven months later I had another one which showed a 9 mm nodule that lit up in the PET part of the scan. As it turned out, that nodule appeared as 5 mm in the CT part in the first scan but it was never reported. My oncologist explained that sometimes radiologists will ignore anything that doesn't light up in PET, since it's basically a PET scan. I was really very angry, as well.

If you're still interested in RFA or cryoablation, try to contact the doctor I recommended in the PM I sent to you before your surgery. The interventional radiologist who did my lung RFA wrote in an e-mail to me: "there is a fabulous IR doctor in Paris named Thierry DeBaere at IGR," when I asked him for a recommendation in France. The IR doc who did my procedure is at a major cancer center in NYC. These are top people in the field. My IR doc also ablated a 2 mm nodule in the area just in case it was cancerous.

I'm sorry that you went through the surgery to find two more mets that were there initially. It is a very frustrating. How were you supposed to know? How was I supposed to know? I wonder whether the two smaller nodules are in the same area of your liver.

Please let us know what happens.

Joan

01-12-2011, 05:22 PM	#4
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: Mets again. Michka, I'm sorry that you are now hearing about these two extra mets. I had a similar experience with my lung nodule. When I was stage 2b I had a PET/CT that was okay. Then, about seven months later I had another one which showed a 9 mm nodule that lit up in the PET part of the scan. As it turned out, that nodule appeared as 5 mm in the CT part in the first scan but it was never reported. My oncologist explained that sometimes radiologists will ignore anything that doesn't light up in PET, since it's basically a PET scan. I was really very angry, as well. If you're still interested in RFA or cryoablation, try to contact the doctor I recommended in the PM I sent to you before your surgery. The interventional radiologist who did my lung RFA wrote in an e-mail to me: "there is a fabulous IR doctor in Paris named Thierry DeBaere at IGR," when I asked him for a recommendation in France. The IR doc who did my procedure is at a major cancer center in NYC. These are top people in the field. My IR doc also ablated a 2 mm nodule in the area just in case it was cancerous. I'm sorry that you went through the surgery to find two more mets that were there initially. It is a very frustrating. How were you supposed to know? How was I supposed to know? I wonder whether the two smaller nodules are in the same area of your liver. Please let us know what happens. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!! Last edited by Joan M; 01-12-2011 at 05:25 PM..