HER2 Support Group Forums - View Single Post - progress in discovering why herceptin doesn't work for everyone, how to supplement it

AlaskaAngel · 12-30-2010, 09:58 AM

While it may seem relatively unimportant, now that these drugs are being given on a blanket basis there is no interest in finding out why they have not been necessary at all for some HER2+++ patients.

How much money and personal resources are being squandered because of this? And are there patients who not only do not benefit but whose condition is possibly worsened, perhaps not even by these drugs themselves but by all the support drugs given with them?

AlaskaAngel

12-30-2010, 09:58 AM	#5
AlaskaAngel Senior Member Join Date: Sep 2005 Location: Alaska Posts: 2,018	Re: progress in discovering why herceptin doesn't work for everyone, how to supplemen While it may seem relatively unimportant, now that these drugs are being given on a blanket basis there is no interest in finding out why they have not been necessary at all for some HER2+++ patients. How much money and personal resources are being squandered because of this? And are there patients who not only do not benefit but whose condition is possibly worsened, perhaps not even by these drugs themselves but by all the support drugs given with them? AlaskaAngel __________________ Dx 2002 age 51 bc for granny, aunt, cousin, sister, mother. ER+/PR+/HER2+++, grade 3 IDC 1.9 cm, some DCIS, Stage 1, Grade 3 Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen Rads necrosis BRCA 1 & 2 negative Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3 Exercise: 7 days a week, 1 hr/day No trastuzumab, no taxane, no AI NED