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Mary L · 12-24-2010, 06:39 AM

Hi Joan, I am concerned also. I see my onc Jan 3rd and will be having ct scans on chest, abd and pelvis. I don't usually get a brain ct. I am ned for 3 years in Oct 2010. I feel very nervous this time. I am metastatic stage IIIB. When my cancer returned 9 months after my original treatment it was very agressive skin mets to the site where my breast was removed. It came back 3 other times when I had to stop Herceptin because my muga tests showed that my ejection fraction was down. I am going to ask him that even if my scans are clean would it be beneficial to go back on Herceptin for awhile. I am so fortunate to have survived 7 years with IBC stage IIIB. I never feel "safe". We can compare notes after our tests are done. Best wishes and Happy Holiday!!!!! Mary L

12-24-2010, 06:39 AM	#3
Mary L Senior Member Join Date: Nov 2010 Location: PA Posts: 297	Re: Need your input about treatment Hi Joan, I am concerned also. I see my onc Jan 3rd and will be having ct scans on chest, abd and pelvis. I don't usually get a brain ct. I am ned for 3 years in Oct 2010. I feel very nervous this time. I am metastatic stage IIIB. When my cancer returned 9 months after my original treatment it was very agressive skin mets to the site where my breast was removed. It came back 3 other times when I had to stop Herceptin because my muga tests showed that my ejection fraction was down. I am going to ask him that even if my scans are clean would it be beneficial to go back on Herceptin for awhile. I am so fortunate to have survived 7 years with IBC stage IIIB. I never feel "safe". We can compare notes after our tests are done. Best wishes and Happy Holiday!!!!! Mary L __________________ Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.