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Old 12-19-2010, 12:29 AM   #23
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Need help! Calling brains in.

Thanks Jackie. It is really interesting but how to test "Ch17CEP".? Maybe he has a way since he also works in a big Hospital in Paris called Pompidou were they have research and run trials. But I doubt it.
And take such a toxic chemo with nothing to measure progress seems crazy. Unless it can be done by the CTC tests?
It's an onc who accepts to explain and discuss. And he knows that I will do nothing if I don't understand.
My body was destroyed by the FEC and then the Taxol. I never was ever the same and suffer ever since. So I just can't imagine going for CMF or Taxotere in the blind. He wasn't my onc at the time.
I will take the article with me! My onc knows I am half american (I know! my English should be better but I have been living in France for 50 years out of 54!) so when I come in with my questions or articles, he makes believe it gets him upset and in fact he spends time to understand what I read and answers.
And what I like is often he answers "well we just don't know".
The last time I asked him what France was doing on TDM1. He said he would answer the next time because he wanted the latest update.
Thanks again Jackie! Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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