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Old 12-16-2010, 01:44 AM   #6
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Need help! Calling brains in.

Thank you for answering Tricia, Becky, Barb and Rich. I was hoping more answers and opinions.
If CMF is partly like Xeloda than why not Xeloda? What does the C and the M bring?
Rich, the margins were clear. I was just thinking the same about hormonotherapy. Why not stay on my low dose of Tamoxifen at the same time? The problem with AI is that there are no different dosings and I suffer so much from them. But I am ready to try again if necessary and better than tamoxifen. I had only switched in October after 3 years of AI or faslodex. I am going to ask about CTC.
Is there anybody out there living after liver mets on a long period who can tell me his or her treatment story?
The onc told me my pronostic was around 20 months. He is sending me for another liver MRI in 3 weeks before starting chemo.
Love to all. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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