[Lani]

why don't you look under the Herceptin/Tykerb forum. I started a thread on list of side effects of herceptin, real or imagined five years ago and it contains a wealth of information. Feel free to peruse it.

I hope it substitutes for the drug companies' lack of enthusiasm/effort in doing the post-marketing data gathering they are required by law to do, but which doesn't seem to be pursued with much vigor.

It is hard to say what symptoms are delayed symptoms from chemo, symptoms of artificial near-instant menopause, delayed effects of radiation (as most side effects of radiation are delayed), effects of poor sleep and/or anxiety vs true herceptin side-effects, but if we don't try to collect them, how will anyone ever figure it out (as much as it can be figured out)

Good reading!