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Chelee · 11-24-2010, 02:02 AM

Hi Shelia,
I think about you all the time. You have had such a rough road this last yr...something GOOD has got to come your way. I am a bit disappointed to hear about the T-DM1...but for now I'm going to hold out hope that it's just going to take a little longer before it does it's magic on you. (Anything is possible.) I have to admit your onc doesn't sound very positive about it. Damn it! Elaine posted some encouraing links to look at. (Good Job Elaine!)

Like the others...I had no idea you had skin mets...when did those little devils pop up...or dare I ask? I hope your upcoming scans show that T-DM1 has had some effect at slowing things down until you can see what else is out there? I'm with Steph here...have you had a bx to see if things have changed so you will have a better idea what to throw at it? Hang in there Shelia...and know I'm keeping you in my thoughts and prayers always.

Chelee

11-24-2010, 02:02 AM	#10
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: How is Sheila? Hi Shelia, I think about you all the time. You have had such a rough road this last yr...something GOOD has got to come your way. I am a bit disappointed to hear about the T-DM1...but for now I'm going to hold out hope that it's just going to take a little longer before it does it's magic on you. (Anything is possible.) I have to admit your onc doesn't sound very positive about it. Damn it! Elaine posted some encouraing links to look at. (Good Job Elaine!) Like the others...I had no idea you had skin mets...when did those little devils pop up...or dare I ask? I hope your upcoming scans show that T-DM1 has had some effect at slowing things down until you can see what else is out there? I'm with Steph here...have you had a bx to see if things have changed so you will have a better idea what to throw at it? Hang in there Shelia...and know I'm keeping you in my thoughts and prayers always. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.