HER2 Support Group Forums - View Single Post - Hi. Introduction. Question regarding herceptin reaction

Chelee · 11-24-2010, 01:47 AM

Hi Leslie,
I had a bad reaction to Taxotere too. I had the red, fried face that was actually painful. When it comes to herceptin alone I was doing wkly doses. I started off that way and almost completed the entire yr doing it wkly. Even wkly I did notice I had times when I'd stand up after herceptin and have a severe headache and have to sit back down. Others times I would notice I couldn't walk upstairs right after my herceptin infusion without being so out of breath it scared me. It made no sense to me since these different problems didn't happen each time. I did have terrible sinus issues but as time went on my body adjusted to it and I had very little to no SE's at all. My ECHO's during this entire yr were great...so that eased any fears I might of had. Continue your wkly infusions for now and have them give you herceptin over a hrs time and see if that helps? We are all different so you just have to see what works best for you.

There are lots of ladies that have their herceptin infusion slowed down. To this day I still have my herceptin infusion set for a hr to be on the safe side & I have no problems at all anymore. We've had many discussion here about Herceptin...in fact here is a link for you to read thru...its all about Herceptin SE's, real and percieved that was started along time ago. It's got alot of info in it. Check it out and I'm sure others will chime in here too.

http://her2support.org/vbulletin/showthread.php?t=23696&highlight=herceptin+real+pe rceived

Chelee

11-24-2010, 01:47 AM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Hi. Introduction. Question regarding herceptin reaction Hi Leslie, I had a bad reaction to Taxotere too. I had the red, fried face that was actually painful. When it comes to herceptin alone I was doing wkly doses. I started off that way and almost completed the entire yr doing it wkly. Even wkly I did notice I had times when I'd stand up after herceptin and have a severe headache and have to sit back down. Others times I would notice I couldn't walk upstairs right after my herceptin infusion without being so out of breath it scared me. It made no sense to me since these different problems didn't happen each time. I did have terrible sinus issues but as time went on my body adjusted to it and I had very little to no SE's at all. My ECHO's during this entire yr were great...so that eased any fears I might of had. Continue your wkly infusions for now and have them give you herceptin over a hrs time and see if that helps? We are all different so you just have to see what works best for you. There are lots of ladies that have their herceptin infusion slowed down. To this day I still have my herceptin infusion set for a hr to be on the safe side & I have no problems at all anymore. We've had many discussion here about Herceptin...in fact here is a link for you to read thru...its all about Herceptin SE's, real and percieved that was started along time ago. It's got alot of info in it. Check it out and I'm sure others will chime in here too. http://her2support.org/vbulletin/showthread.php?t=23696&highlight=herceptin+real+pe rceived Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.