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Re: Tykerb Rash??
Yes, I've gotten the rash on by body before. The Suki Serum recommended by someone on here works wonders at making the rash go away. As I recall it was several weeks into Tykerb the first time I was on it, when the rash developed.
I learned something interesting about Tykerb today. According to my onc, it can work later on down the road even if you previously progressed on it. Don't ask me how or why but I think he is right. It did very little for my brain tumors before and now they were shrinking before I even had the Gamma Knife. Of course it could be from the vaccine but you just never know.
Thinking of you Ceesun!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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