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long run with TDM1 is over
I have one soft tissue met in the chest and and 3 small mets in the liver. I have been so wrapped up in TDM1, that I have not paid attention to whats new on the horizon.
Questions:
1. Do you have to be Brac positive for parp trials?
2. Whats the news on Neratinib? Does anyone know when it's supposed to get approved?
3. I've used tykerb and herceptin. Is there any info on using both with a chemo like Gemzar(haven't tried that one yet)?
4. Do your mets have to be a certain size for cyber knife? Mine are still in the milimeters.
I meet with my onc on Wednesday. I would love to be able to try cyberknife and Herceptin and or Tykerb with Gemzar
Sorry for all the questions. My Mindis going in a million directions.
Kim
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8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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