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Re: I could really use some input
Thanks ladies. I am going to try to get in to see the other Dr. that works with Dr. Slamon. She is involved in the trial I am interested in, and has many more clinic days than Dr. Slamon. I have an email in to Kimberly now.
I think my biggest concern right now is the timing of treatment. I am wrestling with which treatment to do too, but I'm afraid that waiting to add another treatment to Herceptin until after rads is risky. If the spots do turn out to be cancer, that means they grew there during Herceptin and that Herceptin is not working. If I continue only Herceptin until after 6 1/2 weeks of Radiation, and the spots are cancer, that gives them alot of time to grow. My gut is telling me I need to put off rads and do something now. The problem is that it is going to be a battle to get Lapatinib, and that is going to take time too. Even getting qualified for a trial takes time. Do I have that kind of time? If not, maybe chemo is my only choice right now.
I also have a call in to my local onc, who I really love. She still doesn't know about the spots, so I don't know if she would still recommend rads now or later.
On one hand, I can see why my doctor didn't run a CT because we can't tell what these spots are. If they turn out not to be cancer, then I will have done all of this worrying for nothing. On the other hand, if they do turn out to be cancer, I will be so happy that we found them when they were still tiny.
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