[Sandra in GA]

Bonita,
What I was told down at Mayo in Jacksonville was that I was still early stage because it had not spread to other organs. I guess I was IIIC also even though I was never told specificially. I never asked too many questions about that. I just wanted to know what we could do to get rid of it.

The trial I was in with the Tykerb is closed. Now you would have to enter the ALLTO trial and possibly get it in combination with Herceptin or alone. However, I am reading on this site where other women are getting it "off label." This could be something you could ask your do about. It has already been approved be the FDA for late stage. From you information, I think we both are considered "early stage." However, I think we are very late early stage.

One thing you could investigate would be the Walter Reed vaccine trial that I added as a way of adding more protection. After I showed my onc the paper work, he encouraged me to do it. This may be what you have to do. If you want more info, please pm me and I will share contact infomation. I know not all of the sites are closed for this.

Good luck~
Sandra